The Swiss Haemophilia Society The Swiss Haemophilia Society (SHG) was founded in 1965. It is a self-help organization that supports people with haemophilia and other congenital bleeding disorders, as well as their families. Professionally, it is supported by the Swiss Haemophilia Network (SHN) , which consists of treating physicians from haemophilia centers. The SHG represents the interests of those affected both publicly and vis-à-vis insurers and pharmaceutical companies. Like many other Swiss patient organizations, the SHG is a member of AGILE , the umbrella organization for disability self-help. Through AGILE.CH , the SHG also influences political processes and public opinion, for example regarding disability pensions (IV-Renten) or equality for people with disabilities. As a member of the World Federation of Hemophilia , the SHG maintains contact with international haemophilia societies. It manages a solidarity fund for individuals in financial need and provides information on insurance and legal matters. Our Activities Journée Romande This event takes place every two years in Western Switzerland. The event is alternately organized by one of the haemophilia centers in the region. In addition to lectures on medical topics related to haemophilia, participants have the opportunity to network and engage in personal discussions with other affected individuals and physicians. Berne Conference The annual Berne Conference focuses on families with children who have haemophilia and their surroundings. Medical and psychosocial aspects are addressed to help participants manage everyday life better. Topics include possible sports activities, siblings of children with haemophilia, correct dosing of medications, and more. The event provides ample opportunity for questions and exchange among family members. Organized by specialists from the Haemophilia Center at Inselspital Bern. SHG Summer Camp Each year, the SHG organizes a summer camp for children with haemophilia. This program allows young people with haemophilia to exchange experiences with peers. It promotes independence and responsibility in managing haemophilia, offers physical activities within their capabilities, and provides relief to parents caring for chronically ill children. Autumn Conference Organized by specialists from the pediatric and adult haemophilia centers of the SHN Eastern Region. The event begins in the morning with a shared brunch. Lectures focus on one or two current topics related to haemophilia, often featuring guest speakers who provide insights into complementary therapies supporting conventional medicine. The conference also offers opportunities to reconnect with old acquaintances and establish new contacts with other affected individuals. Workshop Every two years, the SHG organizes a two-day workshop weekend. The goal is to provide members with the opportunity for extensive exchange in a pleasant atmosphere. Specialized knowledge and entertainment are also part of the program, ensuring a balanced and informative experience.

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